Finally, clinical research you can use…

by Gwen on May 9, 2012

© 2012 Carl H. Stritter All rights reserved.

It’s been a while since I last posted. My latest project has been taking up my free time – I’m working on an online crowd-sourced research database for those with metastatic breast cancer.

Many of us involved in the breast cancer world are too familiar with the shortcomings of clinical research.  It takes too long (6 – 10 years), costs too much (millions) and almost never studies the integrative approaches used by many (especially herbs, supplements, alternative medicine etc.).

With the help of the breast cancer community, I aim to change this.  I propose a patient-run project that will train those with metastatic breast cancer to enter treatment and outcome information into a freely-available online database.  If we get enough folks participating (and it will take a lot), then we can produce statistically relevant, hypothesis-generating information from which to design clinical trials that will be relevant to our interests.  Importantly, we will have a clear signal for drug or herb efficacy without having to wait 6 – 10 years for clinical trials (wouldn’t it be great to know if for example Metformin is effective and if so, in what type of breast cancer?).

Towards this end, I am seeking to form two groups:  one, a focus group of those whose lives have been affected by breast cancer to help define the scope and design of the database;  secondly, a group of statisticians to find the best statistical model to achieve our aims.

For more information, please check out the blog I have dedicated to the project, MBC iResearch.

I look forward to hearing from you!

© 2012, Gwen. All rights reserved.

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